Welcome to the Pembrokeshire Lupus Group website.
Pembrokeshire Lupus Group is a part of the national charity LUPUS UK. The charity presently has over 5300 Members and a number of Regional Groups around the UK, who arrange medical talks, publish local newsletters, set up local occasions and organise fundraising events.
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We provide support for those with lupus, their families and friends not just in the Pembrokeshire region, but those under the same Health Board, Hywel Dda UHB.
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LUPUS UK also produces an informative national magazine, News and Views, with lupus articles, letters, reports, and photographs, and provides grants for research and specialist lupus nurses.
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We are a relatively new group but our intention is to help LUPUS UK to promote awareness of lupus using their publicity materials, and we intend to contact local hospitals regularly to update them on our work. The medical professionals provide diagnosis and treatment for lupus, but we believe the best way to learn how to manage your life when you have lupus, is to talk to other people who have learnt to live WITH lupus rather than fighting AGAINST it.
In the long term, we would like to arrange fund raising events of our own, to raise awareness locally and to help raise funds for LUPUS UK.
Visit the LUPUS UK website by clicking here
Health Unlocked
LUPUS UK also administers a Health Unlocked group, for lupus patients to support each other.
What is Health Unlocked?
Health Unlocked is a social network for health. By finding others with similar health backgrounds people can take on day to day health concerns together. And because our communities are set up by leading health organisations people have access to credible support.
We believe good health information is good for your health. Health Unlocked has been built to get good support to the people who need it.
We believe good health information is good for your health. Health Unlocked has been built to get good support to the people who need it.
Click here to visit the LUPUS UK Health Unlocked page.
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